Overview
The purpose of the study is to determine if family caregivers of neuro-oncology patients feel less burdened by utilizing the Electronic Social Network Assessment Program (eSNAP) + the Caregiver Navigator.
Eligibility
Inclusion Criteria:
- English-speaking/reading/writing
- Able to complete questionnaires (including by proxy)
- Family Caregivers (FCGs) must self-identify as being a primary FCG pf a patient with a malignant brain tumor. (A primary caregiver is a family member, friend, or other unpaid person who provides at least some care for a patient at home.
- Patients must be diagnosed with new or recurrent primary malignant brain tumor within the last 6 months, be pursuing active treatment at Moffitt (i.e. not second opinion consultation), have a prognosis of at least 6 months
Exclusion Criteria:
- Patients may not participate without a consenting FCG, but FCGs may participate without a consenting patient
- Patients and FCGs who are experiencing acute distress will be excluded from enrollment and referred directly to social work, per Moffitt policy.