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Perceptions of Illness Severity Treatment Goals and Life Expectancy

Perceptions of Illness Severity Treatment Goals and Life Expectancy

Recruiting
18 years and older
All
Phase N/A

Overview

This study is exploring symptom burden, health experiences and expectations of treatment and survival of seriously ill haemodialysis patients and their physicians.

Description

Sharing and communicating information with patients is an integral part of medical care, yet research has shown that disparities exist between physicians and patient perceptions of illness severity. In renal medicine, along with many other specialties, expected prognosis can affect treatment offered.Thus appreciating and understanding one's prognosis can influence patients and relatives' expectations for treatment and guide discussions regarding quality of life.

Previous work has highlighted disparities in the United States between expectations of survival of seriously ill haemodialysis patients and their physicians. The investigators plan to repeat this study within the United Kingdom, to see whether similar issues occur and to elucidate current practice on discussions of prognosis, symptom burden and transplant candidacy. The investigators hope to identify where care can be improved and to enable patients to better make informed decisions on treatment and goals of care.

Eligibility

Inclusion Criteria:

  • Haemodialysis patients 18-100 years old, with a predicted mortality risk of >20% in the next year, their close person and staff members (nurse and doctor) caring for the patient.

Exclusion Criteria:

  • Patients on home haemodialysis

Study details
    Hemodialysis
    Hemodialysis

NCT04225416

Imperial College London

16 February 2024

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